She has been struggling so much lately trying to get words out. I can tell that she has so much to tell us, it’s just not that easy for her. She is writing a lot more and typing often but it’s all gotten so repetitive at this point almost obsessive, for example she types to
Autism has been my main topic of conversation with people lately. So many people are talking about it. I am sure the fact that Alexis is autistic means that I will hear more random stories about Autism; either way it’s being discussed more than ever. One thing I have been thinking a lot about is…
Alexis and Cadence started school today. Alexis started Kindergarten and Cadence started pre-school. They both did well and had a fun time. Alexis seems to be adjusting well to her new school. I asked her teacher if she is sure that being in a mainstream class is the best thing for Alexis and she thinks
Living with an Autistic child sometimes feels really lonely, it’s frustrating knowing you can’t live for even a moment worry free or stress free. It’s hard to explain to others what you go through each day.
My brother passed away earlier this evening. He helped me to be more understanding of special needs. RIP [youtube_sc url=”http://youtu.be/DNqTbRv1bOI”]
Alexis has been so ‘not with me’ the past few days. Keith and I are both stressed out beyond belief with her ‘fits’ Both the girls have been really hard on us. They both have been really mischievous and unable to be satisfied. Cadence is a really big handful these days. I think it should
Alexis had to get more X-rays and her leg. We will know the results next week. She seems to be all better, she is not limping anymore. She didn’t like being at the clinic any more than I did tho. Bleck
April is Autism Awareness Month! Today Alexis got to go on a field trip with her Grandma (my mother) to the Children’s Museum. I had to train in at work so my mom agreed to take her, it gave my mom the opportunity to meet all of Alexis’ classmates and teachers, they had a blast.
Alexis has been much more verbal lately since we got the typing synthesizer on the computer for her. She actually verbalizes her words on occasion now. Mostly saying ‘more’ ‘no’ and ‘mama’ we are so proud of her. [youtube_sc url=”http://youtu.be/KxwVSsDMoZo”]
After 3 days of evaluation and testing we gathered with a social worker and a few of the pediatric physicians that worked with Alexis during our 3 day stay. We connected using a conference call to Alexis’ private Speech and private OT (Occupational Therapist) including her school OT. In this final meeting we discussed the
Today we are going to be heading to our hotel in Rochester. I am really happy that we have finally gotten the opportunity to get Alexis into see a good group of highly recommended doctors. We have been on ‘the appointment list’ for well over 9 months. She will go through 3 days of testing
Alexis has been putting together a weird sequence of letters: AOXCMYST. I am puzzled as to what it could mean. The last time she was fixated on writing this sequence: 590N63808. We figured out that it was SPONGEBOB written with numbers. Hopefully we will be able to figure out this new “code” sequence. It’s kinda